A selection of published papers from HDSC faculty and staff in the following areas:

  1. Advancing Measurement of Decision Quality
  2. Understanding the Quality of Decisions
  3. Implementing Shared Decision Making

Advancing Measurement

Brodney, S., Valentine, K.D. and Sepucha, K., 2021. Psychometric evaluation of a decision quality instrument for medication decisions for treatment of depression symptoms. BMC Medical Informatics and Decision Making21(1), pp.1-10.

Valentine, K.D., Brodney, S., Vo, H., Sepucha, K.R., Fowler, F.J. and Barry, M.J., 2021. Validation of the Impact Index: can we measure disease effects on quality of life in patients with hip and knee osteoarthritis?. Quality of Life Research, pp.1-8.

Valentine, K.D., Vo, H., Fowler, F.J., Brodney, S., Barry, M.J. and Sepucha, K.R., 2020. Development and Evaluation of the Shared Decision Making Process Scale: A Short Patient-Reported Measure. Medical Decision Making, p.0272989X20977878.

Brodney, S., Valentine, K.D., Fowler, F.J. and Barry, M.J., 2020. Validation of the 3-item What Engagement Looks Like (WELL) scale in patients with diabetes. Journal of Patient-Reported Outcomes4(1), pp.1-7.

Brodney, S., Sepucha, K.R., Fowler, F.J., Valentine, K.D. and Barry, M.J., 2020. Validation of the Trust in the Surgical Decision Scale. Annals of Surgery.

Giardina, J.C., Cha, T., Atlas, S.J., Barry, M.J., Freiberg, A.A., Leavitt, L., Marques, F. and Sepucha, K.R., 2020. Validation of an electronic coding algorithm to identify the primary indication of orthopedic surgeries from administrative data. BMC medical informatics and decision making20(1), pp.1-10.

Brodney, S., Fowler, F.J., Barry, M.J., Chang, Y. and Sepucha, K.R., 2019. Comparison of Three Measures of Shared Decision Making: SDM Process_4, CollaboRATE, and SURE Scales. Medical Decision Making39(6), pp.673-680.

Sepucha, K.R., Langford, A.T., Belkora, J.K., Chang, Y., Moy, B., Partridge, A.H. and Lee, C.N., 2019. Impact of timing on measurement of decision quality and shared decision making: longitudinal cohort study of breast cancer patients. Medical Decision Making39(6), pp.642-650.

Winn, K., Ozanne, E. and Sepucha, K.R., 2015. Measuring patient-centered care: an updated systematic review of how studies define and report concordance between patients’ preferences and medical treatments. Patient education and counseling98(7), pp.811-821.

Sepucha, K.R., Feibelmann, S., Cosenza, C., Levin, C.A. and Pignone, M., 2014. Development and evaluation of a new survey instrument to measure the quality of colorectal cancer screening decisions. BMC medical informatics and decision making14(1), p.72.

Fowler, F.J., Gallagher, P.M., Drake, K.M. and Sepucha, K.R., 2013. Decision dissonance: evaluating an approach to measuring the quality of surgical decision making. The Joint Commission Journal on Quality and Patient Safety39(3), pp.136-AP1.

Sepucha, K.R., Borkhoff, C.M., Lally, J., Levin, C.A., Matlock, D.D., Ng, C.J., Ropka, M.E., Stacey, D., Joseph-Williams, N., Wills, C.E. and Thomson, R., 2013. Establishing the effectiveness of patient decision aids: key constructs and measurement instruments. BMC medical informatics and decision making13(2), p.S12.

Sepucha, K.R., Belkora, J.K., Chang, Y., Cosenza, C., Levin, C.A., Moy, B., Partridge, A. and Lee, C.N., 2012. Measuring decision quality: psychometric evaluation of a new instrument for breast cancer surgery. BMC Medical Informatics and Decision Making12(1), p.51.

Sepucha, K.R., Stacey, D., Clay, C.F., Chang, Y., Cosenza, C., Dervin, G., Dorrwachter, J., Feibelmann, S., Katz, J.N., Kearing, S.A. and Malchau, H., 2011. Decision quality instrument for treatment of hip and knee osteoarthritis: a psychometric evaluation. BMC Musculoskeletal Disorders12(1), p.149.

Sepucha, K.R., Fagerlin, A., Couper, M.P., Levin, C.A., Singer, E. and Zikmund-Fisher, B.J., 2010. How does feeling informed relate to being informed? The DECISIONS survey. Medical Decision Making30(5_suppl), pp.77-84.

Lee, C.N., Dominik, R., Levin, C.A., Barry, M.J., Cosenza, C., O’Connor, A.M., Mulley Jr, A.G. and Sepucha, K.R., 2010. Development of instruments to measure the quality of breast cancer treatment decisions. Health Expectations13(3), pp.258-272.

Sepucha, K.R., Levin, C.A., Uzogara, E.E., Barry, M.J., O’Connor, A.M. and Mulley, A.G., 2008. Developing instruments to measure the quality of decisions: early results for a set of symptom-driven decisions. Patient Education and Counseling73(3), pp.504-510.

Sepucha, K.R., Ozanne, E., Silvia, K., Partridge, A. and Mulley Jr, A.G., 2007. An approach to measuring the quality of breast cancer decisions. Patient Education and Counseling65(2), pp.261-269.

Sepucha, K.R., Fowler, F.J. and Mulley Jr, A.G., 2004. Policy Support For Patient-Centered Care: The Need For Measurable Improvements In Decision Quality. Health Affairs23(Suppl2), pp.VAR-54.


Decision Quality

Sepucha, K.R., Vo, H., Chang, Y., Dorrwachter, J.M., Dwyer, M., Freiberg, A.A., Talmo, C.T. and Bedair, H., 2021. Shared decision-making is associated with better outcomes in patients with knee but not hip osteoarthritis: The DECIDE-OA randomized study. JBJS, pp.10-2106.

Brodney, S., Valentine, K.D., Sepucha, K., Fowler, F.J. and Barry, M.J., 2021. Patient Preference Distribution for Use of Statin Therapy. JAMA Network Open4(3), pp.e210661-e210661.

Brodney, S., Fowler, F.J., Stringfellow, V., Valentine, K.D. and Barry, M.J., 2020. National survey of decision-making for antidepressants and educational level. The Journal of the American Board of Family Medicine33(1), pp.80-90.

Sepucha, K.R., Atlas, S.J., Chang, Y., Freiberg, A., Malchau, H., Mangla, M., Rubash, H., Simmons, L.H. and Cha, T., 2018. Informed, patient-centered decisions associated with better health outcomes in orthopedics: prospective cohort study. Medical Decision Making38(8), pp.1018-1026.

Fowler, F.J., Gerstein, B.S. and Barry, M.J., 2013. How patient centered are medical decisions?: Results of a national survey. JAMA Internal Medicine173(13), pp.1215-1221.

Fowler, F.J., Levin, C.A. and Sepucha, K.R., 2011. Informing and involving patients to improve the quality of medical decisions. Health Affairs30(4), pp.699-706.

Barry, M.J., Mulley, A.G., Fowler, F.J. and Wennberg, J.W., 1988. Watchful waiting vs immediate transurethral resection for symptomatic prostatism: the importance of patients’ preferences. JAMA259(20), pp.3010-3017.


Implementing Shared Decision Making

Sepucha, K., Han, P.K.J., Chang, Y., Atlas, S.J., Korsen, N., Leavitt, L., Lee, V., Percac-Lima, S., Mancini, B., Richter, J., Scharnetzki, L., Siegel, L.C., Valentine, K.D., Fairfield, F.M., Simmons, L.H., 2022. Promoting Informed Decisions about Colorectal Cancer Screening in Older Adults (PRIMED Study): a Physician Cluster Randomized Trial. J Gen Intern Med, p. 1-8.

Fowler Jr, F.J., Barry, M.J., Sepucha, K.R. and Moulton, B.W., 2021. Let’s Require Patients to Review a High-quality Decision Aid Before Receiving Important Tests and Treatments. Medical Care59(1), p.1.

Mangla, M., Cha, T.D., Dorrwachter, J.M., Freiberg, A.A., Leavitt, L.J., Rubash, H.E., Simmons, L.H., Wendell, E.L. and Sepucha, K.R., 2018. Increasing the use of patient decision aids in orthopaedic care: results of a quality improvement project. BMJ Quality & Safety27(5), pp.347-354.

Hinsberg, L., Marques, F., Leavitt, L., Skubisz, C., Sepucha, K.R. and Wasfy, J.H., 2018. Comparing the effectiveness of two different decision aids for stable chest discomfort. Coronary Artery Disease29(3), pp.230-236.

Brodney, S., Wescott, P.H., Moulton, B.W., Hartmann, K., Chang Y. and Barry, M.J., 2018 A Decision Aid May Offer Liability Protection for a Bad Obsterical Outcome: Results of Mock Trials. The Journal of Law, Medicine & Ethics, 46(4), pp.967-974.

Sepucha, K.R., Atlas, S.J., Chang, Y., Dorrwachter, J., Freiberg, A., Mangla, M., Rubash, H.E., Simmons, L.H. and Cha, T., 2017. Patient decision aids improve decision quality and patient experience and reduce surgical rates in routine orthopaedic care: a prospective cohort study. JBJS99(15), pp.1253-1260.

Simmons, L.H., Leavitt, L., Ray, A., Fosburgh, B. and Sepucha, K.R., 2016. Shared decision making in common chronic conditions: impact of a resident training workshop. Teaching and Learning in Medicine, 28(2), pp.202-209.

Sepucha, K.R., Simmons, L.H., Barry, M.J., Edgman-Levitan, S., Licurse, A.M. and Chaguturu, S.K., 2016. Ten years, forty decision aids, and thousands of patient uses: shared decision making at Massachusetts General Hospital. Health Affairs35(4), pp.630-636.

Brodney, S., Fowler, F.J., Wexler, R. and Bowen, M., 2016. Shared decision-making in clinical practice: examples of successful implementation. European Journal for Person Centered Healthcare4(4), pp.656-659.

Barry, M.J., Wexler, R.M., Brackett, C.D., Sepucha, K.R., Simmons, L.H., Gerstein, B.S., Stringfellow, V.L. and Fowler, F.J., 2015. Responses to a decision aid on prostate cancer screening in primary care practices. American Journal of Preventive Medicine49(4), pp.520-525.

Sepucha, K.R., Abhyankar, P., Hoffman, A.S., Bekker, H.L., LeBlanc, A., Levin, C.A., Ropka, M., Shaffer, V.A., Sheridan, S.L., Stacey, D. and Stalmeier, P., 2018. Standards for UNiversal reporting of patient Decision Aid Evaluation studies: the development of SUNDAE Checklist. BMJ Quality & Safety27(5), pp.380-388.

Hoffman, R.M., Lewis, C.L., Pignone, M.P., Couper, M.P., Barry, M.J., Elmore, J.G., Levin, C.A., Van Hoewyk, J. and Zikmund-Fisher, B.J., 2010. Decision-making processes for breast, colorectal, and prostate cancer screening: the DECISIONS survey. Medical Decision Making30(5_suppl), pp.53-64.

Elwyn, G., O’Connor, A., Stacey, D., Volk, R., Edwards, A., Coulter, A., Thomson, R., Barratt, A., Barry, M.J., Bernstein, S. and Butow, P., 2006. Developing a quality criteria framework for patient decision aids: online international Delphi consensus process. BMJ333(7565), p.417.